Ethical Challenges in Healthcare

Medical Advocates
Ethics and Infectious Diseases

Marginalized Healthcare

Children                             Refugees/Internally Displaced Persons
Adolescents                       Lesbians
Mentally Ill
Injection Drug Users
Pregnant Women/Neonates
Prisoners
Prisoners of War
MSM
Intimate Partners
Transsexuals/Transgendered
Sexworkers

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Last Update: April 10, 2017
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Children

        Journal Papers, Abstracts, and Commentaries

Confidentiality and children with HIV.
Mighten J.
Paediatr Nurs. 2009 Jun;21(5):14-8
Abstract

The ethics of using innovative therapies in the care of children.
Eyadhy AA, Razack S.
Paediatr Child Health. 2008 Mar;13(3):181-4.
Abstract

Features of Whey Protein Concentrate Supplementation in Children with Rapidly
Progressive HIV Infection.
Moreno YF, Sgarbieri VC, da Silva MN, et al
J Trop Pediatr. 2005 Jul 13;
Abstract

Children of Jehovah's Witnesses and adolescent Jehovah's Witnesses: what are their
rights?
Woolley S.
Arch Dis Child. 2005 Jul;90(7):715-9.
Abstract

Adolescents

        Journal Papers, Abstracts, and Commentaries

The Body as a Site of Gender-related Distress: Ethical Considerations for Gender Variant Youth in Clinical Settings.
Roen K.
J Homosex. 2015 Dec 7
Abstract
Ethical Tradeoffs in Trial Design: Case Study of an HPV Vaccine Trial in HIV-Infected Adolescent Girls in Lower Income Settings.
Lindsey JC, Shah SK, Siberry GK, et al
Dev World Bioeth. 2013 May 31.
Abstract

Comprehension of a simplified assent form in a vaccine trial for adolescents.
Lee S, Kapogiannis BG, Flynn PM, et al
J Med Ethics. 2013 Jan 24.
Abstract

State Adolescent Consent Laws and Implications for HIV Pre-Exposure Prophylaxis.
Culp L, Caucci L.
Am J Prev Med. 2013 Jan;44(1 Suppl 2):S119-24.
Abstract

Relative Versus Absolute Standards for Everyday Risk in Adolescent HIV Prevention Trials:
Expanding the Debate.
Snyder J, Miller CL, Gray G.
Am J Bioeth. 2011 Jun;11(6):5-13
Abstract

Ethical and regulatory considerations for the inclusion of adolescents in HIV biomedical
prevention research.
Nelson RM, Lewis LL, Struble K, Wood SF.
J Acquir Immune Defic Syndr. 2010 Jul 1;54 Suppl 1:S18-24.
Abstract

Youth-specific considerations in the development of preexposure prophylaxis, microbicide,
and vaccine research trials.
Rudy BJ, Kapogiannis BG, Lally MA, et al
J Acquir Immune Defic Syndr. 2010 Jul 1;54 Suppl 1:S31-42.
Abstract

Behavioral considerations for engaging youth in HIV clinical research.
Hosek SG, Zimet GD.
J Acquir Immune Defic Syndr. 2010 Jul 1;54 Suppl 1:S25-30.
Abstract

Social justice and social determinants of health: lesbian, gay, bisexual, transgendered,
intersexed, and queer youth in Canada.
Dysart-Gale D
J Child Adolesc Psychiatr Nurs. 2010 Feb;23(1):23
Abstract

Ethical issues in research with homeless youths.
Ensign J, Ammerman S.
J Adv Nurs. 2008 May;62(3):365-72.
Abstract

Protecting Sexual Minority Youth from Research Risks: Conflicting Perspectives.
Miller RL, Forte D, Wilson BD, Greene GJ.
Am J Community Psychol. 2006 Jun 15;
Abstract

FULL-TEXT ARTICLE
Ethical conflicts in health care for adolescents
Taquette SR, Vilhena MM, Silva MM, Vale MP. et al
Cad Saude Publica. 2005 Nov-Dec;21(6):1717-25.
Paper

Mentally Ill

        Journal Papers, Abstracts, and Commentaries

Ethics and the Treatment of the Mentally Ill, Homeless Person: a Perspective on Psychiatry Resident Training.
Stovall J, Fleisch SB, McQuistion HL, et al
Acad Psychiatry. 2015 Apr 21.
Abstract
Research Protections for Diverted Mentally Ill Individuals: Should they be Considered Prisoners?
Amory Carr W, Amrhein C, Dery R.
Behav Sci Law. 2011 Oct 20.
Abstract

Working to improve mental health services: the North Carolina
advocacy effort.
Foy JM, Earls MF, Horowitz DA.
Pediatrics 2002 Dec;110(6):1232-7
Abstract

Ethical issues in the feeding of patients suffering from dementia: a focus group study of
hospital staff responses to conflicting principles.
Wilmot S, Legg L, Barratt J
J. Nurs Ethics 2002 Nov;9(6):599-611
Abstract

Injection Drug Users

Paying IDUs for Outreach

        Journal Papers, Abstracts, and Commentaries

Paying injection drug users to educate and recruit their peers: why participant-driven
interventions are an ethical public health model.
Hughes JJ
Qual Manag Health Care 1999 Summer;7(4):4-12
Abstract

Prescription of sterile injection equipment

        Journal Papers, Abstracts, and Commentaries

Physician prescribing of sterile injection equipment to prevent HIV infection: time
for action.
Burris S, Lurie P, Abrahamson D, Rich JD
Ann Intern Med 2000 Aug 1;133(3):218-26
Abstract

Criminalization

          Journal Papers, Abstracts, and Commentaries

Ethical dilemmas created by the criminalization of status behaviors: case examples
from ethnographic field research with injection drug users.
Buchanan D, Khoshnood K, Stopka T, et al.
Health Educ Behav 2002 Feb;29(1):30-42
Abstract

Harm Reduction
          Journal Papers, Abstracts, and Commentaries

Visualizing harm reduction: Methodological and ethical considerations.
Switzer S, Guta A, de Prinse K, et al
Soc Sci Med. 2015 Mar 19;133:77-84.
Abstract

HIV Disclosure

          Journal Papers, Abstracts, and Commentaries

Positive and Negative Consequences of HIV Disclosure Among Seropositive Injection
Drug Users.
Parsons JT, Vanora J, Missildine W, et al
AIDS Educ Prev. 2004 Oct;16(5):459-75.
Abstract

HIV Transmission

          Journal Papers, Abstracts, and Commentaries

FULL-TEXT PDF ARTICLE
Informed recruitment in partner studies of HIV transmission: an ethical issue in couples research.
McNutt LA, Gordon EJ, Uuskula A.
BMC Med Ethics. 2009 Aug 27;10(1):14
Paper

General Issues

          Journal Papers, Abstracts, and Commentaries

Ethical Challenges Posed by the Ebola Virus Epidemic in West Africa.
Omonzejele PF.
J Bioeth Inq. 2014 Nov 12.
Abstract
Participant and Staff Experiences in a Peer-Delivered HIV Intervention with Injection Drug Users.
Kostick KM, Weeks M, Mosher H.
J Empir Res Hum Res Ethics. 2014 Feb;9(1):6-18
Abstract

Ethical issues in HIV prevention research with people who inject drugs.
Sugarman J, Rose SM, Metzger D.
Clin Trials. 2013 Oct 14.
Abstract

Ethical and human rights imperatives to ensure medication-assisted treatment for opioid
dependence in prisons and pre-trial detention.
Bruce RD, Schleifer RA.
Int J Drug Policy. 2008 Jan 14
Abstract

FULL-TEXT ARTICLE
Policy Makers Ignoring Science Scientists Ignoring Policy: The Medical Ethical Challenges
of Heroin Treatment.
Small DR, Drucker E.
Harm Reduct J. 2006 May 2;3(1):16
Paper

FULL-TEXT ARTICLE
Is lawful discrimination against illicit drug users acceptable?
Wodak AD, Lynch PA, Crofts N.
Med J Aust. 2004 Apr 19;180(8):405-7.
Paper

Pregnant Women/Neonates

General/Miscellaneous Reports

           Journal Papers, Abstracts, and Commentaries

Ethical issues for late-stage trials of multipurpose prevention technologies for HIV and pregnancy.
Cohen JA, Mastroianni AC, Macklin R
Int J Gynaecol Obstet. 2014 Jul 22
Abstract
An Ethical Analysis of Opt-Out HIV Screening for Pregnant Women.
Wocial LD, Cox EG.
J Obstet Gynecol Neonatal Nurs. 2013 Jun
Abstract

Randomized Controlled Trials in Pregnancy: Scientific and Ethical Aspects Exposure to different opioid medications during pregnancy in an intra-individual comparison.
Unger A, Jagsch R, Jones H, et al
Addiction. 2011 Mar 25.
Abstract

Elective cesarean birth: issues and ethics of an informed decision.
McFarlin BL.
J Midwifery Womens Health. 2004 Sep-Oct;49(5):421-9.
Abstract

Caesarian Sections

           Journal Papers, Abstracts, and Commentaries

Elective cesarean birth: issues and ethics of an informed decision.
McFarlin BL.
J Midwifery Womens Health. 2004 Sep-Oct;49(5):421-9.
Abstract

Preventing HIV Transmission

           Journal Papers, Abstracts, and Commentaries

Preventing mother-to-child transmission of HIV in developing countries:
recent developments and ethical implications.
Hankins C.
Reprod Health Matters 2000 May;8(15):87-9
Abstract

Fetal Protection

          Journal Papers, Abstracts, and Commentaries

HIV, unwanted pregnancy and abortion - where is the human rights approach?
de Bruyn M.
Reprod Health Matters. 2012 Dec;20(39 Suppl):70-9.
Abstract

Ethic, medical and legal reflections about the fetal protection by a pregnant woman suffering,
in comorbidity, from HIV infection.
Cannovo N, Agangi A, Sansone M, et al
J Matern Fetal Neonatal Med. 2009 Aug 20:1-2
Abstract

Infanticide: contrasting views.
Spinelli MG.
Arch Women Ment Health. 2005 May 4;
Abstract

Feminist ethics must inform practice: interventions with perinatal substance users.
Marcellus L.
Health Care Women Int. 2004 Sep;25(8):730-42.
Abstract

Treatment of human immunodeficiency virus during pregnancy: the shift from an
exclusive focus on fetal protection to a more balanced approach.
Kass NE, Taylor HA, Anderson J
Am J Obstet Gynecol 2000 Apr;182(4):856-9
Abstract

Prisoners of War

        Journal Papers, Abstracts, and Commentaries

Treating war detainees and terror suspects: legal and ethical responsibilities of
military physicians.
Singh JA.
Mil Med. 2007 Dec;172(12 Suppl):15-21.
Abstract

MSM

        Journal Papers, Abstracts, and Commentaries

Ethical Issues in a Study of Bipolar Disorder and HIV Risk Among African-American Men Who
Have Sex With Men: Case Study in the Ethics of Mental Health Research.
Loue S.
J Nerv Ment Dis. 2012 Mar;200(3):236-41.
Abstract

Blood donation, deferral, and discrimination: FDA donor deferral policy for men who have sex with men.
Galarneau C.
Am J Bioeth. 2010 Feb;10(2):29-39.
Abstract

Strategies and ethical considerations for the recruitment of young men who have
sex with men: challenges of a vaccination trial in Mexico.
Gutierrez-Luna A, Angeles-Llerenas A, et al
Clin Trials. 2009 Jul 22
Abstract

Intimate Partners

        Journal Papers, Abstracts, and Commentaries

Ethical conduct in intimate partner violence research: challenges and strategies.
Btoush R, Campbell JC.
Nurs Outlook. 2009 Jul-Aug;57(4):210-6.
Abstract

Transgendered/Transsexuals

        Journal Papers, Abstracts, and Commentaries

ESHRE Task Force on Ethics and Law 23: medically assisted reproduction in singles, lesbian and gay couples, and transsexual people
De Wert G, Dondorp W, Shenfield F, et al
Hum Reprod. 2014 Jul 22.
Abstract
Ethical Issues in Considering Transsexual Surgeries as Aesthetic Plastic Surgery.
Latham J.
Aesthetic Plast Surg. 2013 Mar 15
Abstract

Desire for non-mutilative disability in a nonhomosexual, male-to-female transsexual.
Kolla NJ, Zucker KJ.
Arch Sex Behav. 2009 Dec;38(6):1057-63
Abstract

A father's motherhood... or a mother's fatherhood? Transgender, assisted reproduction
and bioethics
Alvarez-Díaz JA.
Gac Med Mex. 2009 Mar-Apr;145(2):151-7
Abstract
Ethical Conflicts over the Management of Transsexual Adolescents-Report of Two Cases.
Baltieri DA, Prado Cortez FC, de Andrade AG.
J Sex Med. 2009 Jul 28.
Abstract

Sexworkers

        Journal Papers, Abstracts, and Commentaries

FULL-TEXT ARTICLE
Enhancing the Ethical Conduct of HIV Research with Migrant Sex Workers: Human Rights, Policy, and Social Contextual Influences.
Goldenberg SM, Brouwer KC, Jimenez TR, et al
PLoS One. 2016 May 9;11(5):e0155048
Paper
Managing the public health risk of a 'sex worker' with hepatitis B infection: legal and ethical
considerations.
Poll R.
J Med Ethics. 2011 May 5
Abstract

Refugees/Internally Displaced Persons

        Journal Papers, Abstracts, and Commentaries

FULL-TEXT ARTICLE
Antiretroviral Therapy for Refugees and Internally Displaced Persons: A Call for Equity.
Mendelsohn JB, Spiegel P, Schilperoord M, et al
PLoS Med. 2014 Jun 10;11(6):e1001643.
Paper

Lesbians

        Journal Papers, Abstracts, and Commentaries

ESHRE Task Force on Ethics and Law 23: medically assisted reproduction in singles, lesbian and gay couples, and transsexual people
De Wert G, Dondorp W, Shenfield F, et al
Hum Reprod. 2014 Jul 22.
Abstract

Healthcare Workers

        Journal Papers, Abstracts, and Commentaries

Prioritising Healthcare Workers for Ebola Treatment: Treating Those at Greatest Risk to Confer Greatest Benefit.
Satalkar P, Elger BE, Shaw DM.
Dev World Bioeth. 2015 Feb 6
Abstract

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Ethical Challenges in Healthcare for the Marginalized