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Ethical Challenges


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Ethical Challenges
Human Rights Advocacy
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Last Update:  September 10, 2016
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General Reports
       

     Internet Documents

  FULL-TEXT REPORT
State of the World's Mothers 2003 - Protecting Children and Mothers in War and Conflict
Save the Children USA
October 07, 2003
Report

     Journal Papers, Abstracts, and Commentaries

  Using Community-Based Participatory Research to Advocate for Homeless Children.
Fetherman DL, Burke SC.
Soc Work Public Health. 2014 Oct 15:1-8.

Abstract

 

Advocacy Opportunities for Pediatricians Caring for Maltreated Children.
Crawford-Jakubiak JE.
Pediatr Clin North Am
. 2014 Oct;61(5):1073-1083.

Abstract

Human rights obligations and policy supporting children and families. JRF Findings.
[No authors listed] 

Child Care Health Dev.
2005 Sep;31(5):629.
Abstract


Ethical Challenges
Drug Equity/Access Disclosure Medical Decision-Making  

Drug  Equity/Access

     Journal Papers, Abstracts, and Commentaries

  Medicines for children licensed by the European Agency for the Evaluation of Medicinal Products.
Muller FM, Trusen A, Weig M.
Eur J Pediatr 2002 Nov;161(11):563-74
Abstract
 

Disclosure

     Journal Papers, Abstracts, and Commentaries
 
  Ethical and Psychosocial Considerations in Informing HIV-Exposed Uninfected Children That They Were Exposed to HIV and Antiretroviral Medications In Utero.
Klitzman R, Mellins CA, Philbin MM, et al
Am J Public Health
. 2016 Aug;106(8):1390-6.
Abstract

Disclosure of serostatus by HIV infected youth: the experience of the REACH study. Reaching for Excellence in Adolescent Care and Health.
D'Angelo LJ, Abdalian SE, Sarr M, et al.
J Adolesc Health 2001 Sep;29(3 Suppl):72-9
Abstract

Disclosure of HIV diagnosis to children: When, where, why, and how.
Gerson AC, Joyner M, Fosarelli P, et al
.
J Pediatr Health Care
2001 Jul-Aug;15(4):161-7
Abstract

Public disclosure of a child's HIV infection: impact on children and families.
Wiener LS, Battles HB, Heilman N.

AIDS Patient Care STDS
2000 Sep;14(9):485-97
Abstract

Perceptions of children with HIV infection when not told for so long: Implications for diagnosis disclosure.
Instone SL.
J Pediatr Health Care 2000 Oct;14(5):235-243
Abstract

Informed Consent

     Journal Papers, Abstracts, and Commentaries

 

FULL-TEXT ARTICLE
Putting the 'informed' into 'consent': A matter of plain language.
Green J, Duncan R, Barnes G, Oberklaid F.  
J Paediatr Child Health. 2003 Dec;39(9):700-703.
Paper

Factors influencing parental consent in pediatric clinical research.
Rothmier JD, Lasley MV, Shapiro GG.
Pediatrics
2003 May;111(5 Pt 1):1037-41
Abstract

Consent for Emergency Medical Services for Children and Adolescents.
Pediatrics 2003 Mar;111(3):703-706
Abstract

 

Medical Decision-Making

    Journal Papers, Abstracts, and Commentaries

 
Children of Jehovah's Witnesses and adolescent Jehovah's Witnesses:
what are their rights?
Woolley S.
Arch Dis Child. 2005 Jul;90(7):715-9.
Abstract

How paediatric residents involve children during medical decision-making?
Andre N, Gaudart J, Bernard JL, Chabrol B.

Arch Pediatr. 2005 Jul;12(7):1068-107
Abstract
 

  Fairness and reasonableness of the child's decision: a proposed legal standard for children's
participation  in medical decision making.
Walker NE, Doyon T.
Behav Sci Law 2001;19(5-6):611-36
Abstract

     Conference Reports, Abstracts, and Posters

  Challenging parents' right to decide against treatment for HIV-infected children in a resource-
rich country

V J Rogers, M A Clapson, V M Novelli
(15IAC)
Abstract
 
Human Subject Research
 
    Journal Papers, Abstracts, and Commentaries
 
  What do research ethics committees say about applications to conduct research
involving children?
Angell E, Biggs H, Gahleitner F, Dixon-Woods M.

Arch Dis Child
. 2010 Jun 23
Abstract
 
The legal ethics of pediatric research.
Coleman DL.
Duke Law J. 2007 Dec;57(3):517-624
Abstract
 
Ethical concerns regarding guidelines for the conduct of clinical research
on children

Edwards SDMcNamee MJ
J Med Ethics
2005;31

Abstract
 
Children in Medical Research: balancing protection and access: has the pendulum swung too far?
Ross LF.
Perspect Biol Med. 2004 Fall;47(4):519-36.
Abstract
 
Ethical principles and operational guidelines for good clinical practice in paediatric research.
Recommendations of the Ethics Working Group of the Confederation of European Specialists
in Paediatrics (CESP).
Gill D.
Eur J Pediatr. 2004 Jan 10
Abstract
 
Is it in a neonate's best interest to enter a randomised controlled trial?
Allmark P, Mason S, Gill AB, Megone C.
J Med Ethics 2001 Apr;27(2):110-3
Abstract

Infant Circumcision

    Journal Papers, Abstracts, and Commentaries

  A covenant with the status quo? Male circumcision and the new BMA guidance to doctors
Fox M, Thomson M 
J Med Ethics2005;31:463-469;
Abstract

Human Rights Challenges
Principles Human Rights/Public Health         Violations  

Violations

El Salvador

     Internet Documents

  FULL-TEXT REPORT
El Salvador: Child Labor on Sugar Plantations
Human Rights Web June 10, 2004
Paper
 
India

     Internet Documents

  FULL-TEXT DOCUMENT
India: AIDS Fueled by Abuses Against Children
Human Rights Watch July 29 2004
Paper

Kenya

    Journal Papers, Abstracts, and Commentaries

FULL-TEXT REPORT
HIV/AIDS and Children's Rights in Kenya .
Csete J. Human Rights Watch 

June
2001 Vol. 13, No. 4(A)
Paper


Healthcare Advocacy
       

    Journal Papers, Abstracts, and Commentaries

  Pediatricians and the Rights of the Child. UN Convention provides blueprint for monitoring the well-being
of children worldwide.
Kasper J. 
Pediatr Ann. 2004 Oct;33(10):712-5.
Abstract
 
  FULL-TEXT ARTICLE
Advocating for children's health: a US and UK perspective.
Waterston T, Tonniges T.  
Arch Dis Child 2001 Sep;85(3):180-182 
Paper


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Advocacy, Human Rights, and Ethical Challenges